Amazing Zeke

This is the story of how Zeke became my life. Feb 22, 2011 I found out I was 22 weeks pregnant. Two weeks later I found out I was having a boy! I was so excited! I worked up until three days before I delivered. I was contracting at a Fourth of July party and the next day I knew it was time. He was full term. I had to go in for an emergency C-section. I then found out that he had some issues. I first noticed his skin tags around his jaw and ear. The doctors then told me he was missing his entire right ear. Then I saw his jaw was extremely underdeveloped. This is called Goldenhar. I was sad, mad, and confused. I didn’t know what I had done to make this happen. I was afraid I wasn’t going to be able to handle this and that baby deserved a mom that was perfect. It wasn’t long before I knew I was meant to be his “perfect” mom. He had several tests. We learned that his left “normal” ear had normal hearing and just mild loss on his right. It was a miracle. He had no ear! He can’t feed orally but he wants to. His chin is too small and it tires him out to try. He has a long road ahead of him and there’s no doubt that he will be amazing. We met with a plastic surgeon and he decided that jaw surgery is the way to go. Through it all he is happy and strong, and such an inspiration!